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   The many stages that can come to pass


CONCERN: created when an illness lingers and medical professionals are
unable to find the etiology (cause) of the problem.

FEAR: caused due to uncertainties-could it be an undetected illness that
hasn't fully manifested itself, i.e., CANCER, MS, Lupus, AIDS,
SCLERODERMA etc.

DENIAL: all of us, at some time, possess this emotion especially when it
pertains to our most valuable possession, our health. Many patients tend
to "deny" Chronic Diseases and attempt to "live their lives", but soon
find their body is controlled by something out of their control.

TEMPORARY RELIEF: established when all other illnesses known to modern
medicine are negative. When a patient is given a diagnosis of a Chronic
Disease, there is "temporary relief" in having a name for the illness.
But, then reality sets in that a "name" doesn't cure the illness.

FRUSTRATION: due to the patient's feeling that their body has somehow
let them down. This can result in "jealousy" or "envy" in that the
patient can't do what someone helping them is doing. They don't want the
person helping to be ill, but instead wish they were well enough to
handle the task. Society tends to dictate that if you try a  little
harder, endure, etc., you can do anything.  But, Chronic Diseases
becomes the "master" in that regard.

UNFAIRNESS: results when the patient feels something has been taken
away-i.e., "being cheated of going on with their life". Sometimes this
emotion can create a sense of "worthlessness". ANGER sometimes directed
at doctors who have told the patient "it's all in your head" (some
patients have been placed in psychiatric wards).  Anger often results
when patients spend thousands of dollars seeing many different doctors
trying to "convince" someone that they really are sick.  Sometimes anger
becomes so severe the patient can appear belligerent. This emotion
emerges when the media, public, medical professionals, friends and loved
ones lack understanding of Chronic Diseases. Too often, society demands
visual evidence of affliction before it can be valid, i.e., a broken
leg, crippled body, etc., but too often forgets that some illnesses such
as CANCER often have no physical signs until it's too late.

LOSS OF PERSONAL CONTROL: a very difficult emotion to handle. Everyone
realizes we have very little control of the rest of the world, but we
find comfort in feeling we have a lot of control within ourselves.
However, Chronic Diseases tends to become the "authority" of the patient
and suddenly "is in the driver's seat" showing no respect for the body
it resides in.

DEVASTATION: created because of not only emotional aspects of the
illness, but also financial loss if a patient becomes disabled or can
only work part- time. All of us have certain aspirations, but Chronic
Diseases all too often destroys those plans and brutally tells the
patient that "without your health, you are very limited."

HOPELESSNESS: a few patients suffer this emotion so severely, they may
feel suicide is their only alternative. Not all patients consider
suicide an option, but for the few who do, pre-existing psychological
factors may have been involved before getting a Chronic Disease.
Treatment with a counselor familiar with Chronic diseases can help
patients deal with this emotion.

MOURNING: sadly, a process each patient has to endure. The realization
that their life may never, ever, again be the same. A "loss" is suffered
not just personally, but many times friends and loved ones tend not to
understand the illness or the loss of an energetic person, and a
closeness once shared can diminish or even disappear.  Shattered dreams
are hard to lose, i.e., unable to fulfill a long-awaited promotion,
career, marriage, family, new home, new car, attend school, prom, or
even be well enough to go on vacation.

HUMBLING: the illness tears at every emotion until it "humbles" the
patient. Patients come to realize that regardless of the economic or
social status, they share a certain camaraderie with other Chronic
Disease patients.  Many patients say that if they get well, they will
never be the same. People with Chronic Diseases are given a new
perspective to life with the realization that we are truly dependent
upon our health.

LEARNING TO COPE: comes only after knowledge that the medical community
does not have "the answer" for all or many Chronic Diseases. Patients
must reach within their beings and find the tools to live with this
illness.  They can do that with the help of others through reputable
support groups, educational materials that are backed by fact, not
fiction, and relying on loved ones, family and friends. Also, they can
work with their physician in being a "partner" in their own health care.

ACCEPTANCE: this emotion goes hand in hand with coping. Once patients
learn to accept their Chronic Diseases rather than "fight" it, they tend
to find ways to conserve what energy they do have, and spend it wisely
each day.  They find ways to eliminate stress and  prioritize.
Unfortunately, some things never get done, but somehow life still tends
to proceed in spite of it. With acceptance, each patient tends to find
strength they did not realize was there.

HOPE: even though "coping" and "acceptance" allow patients to adjust to
Chronic Diseases and still enjoy life, each patient, deep within,
desires that medical science will find a cure, prevention and/or
treatment. Some patients depend on this emotion more than others.

UNDERSTANDING: this emotion is the greatest "gift" those not afflicted
with a Chronic Disease can give the patients. Patients are burdened
enough just living with a Chronic Disease without having to convince
others that this is a physical illness. "Two truly are stronger than
one," and though understanding, maybe we can help patients endure all
the aspects of their illness lest we forget that "people do need
people." Some people say, there is always light at the end of the
tunnel. I agree, But in the tunnel of a Chronic Disease you scrape,
climb and even dig. Sometimes you think you have found the end, But
alas, you just find a dead end. There are streaks of light coming in,
called hope. That is what keeps you going. The end of the tunnel is,
understanding, and of course, a cure. In the Chronic Disease tunnel,
only the strong survive!


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